Tuesday, July 10, 2012

July 10 update

From Mike:
The latest news is difficult to share, so forgive any bluntness or lack of emotion.

Much has happened in the last ten days.  Unfortunately, Linda's liver function has been rapidly deteriorating over the last few weeks. 

This turn has happened so suddenly and so strongly that Linda's body is no longer able to tolerate further treatment. (Most chemos are processed by the liver, and the Dr feels strongly that any further chemo would likely do much more harm than good, causing the liver to shut down prematurely and robbing Linda of her remaining precious moments). 

We have explored and carefully considered a great number of treatments, but sadly none are options at this point.  No chemotherapies, no clinical trials, no local radiation therapies, no hormonal therapies, and no other therapies remain as options due to the current state of Linda's liver.

Based on these results, Linda has decided to shift from active disease-fighting treatment to palliative care to maximize the quality of her remaining life.  We have met with Hospice nurses over the last few days, and they've been able to help in many ways (better managing pain, getting a comfortable hospital bed, oxygen, etc.). 

As Linda has wished, she will be able to spend her remaining days comfortable at home.

Though Linda is unable to fight the cancer with direct treatments, her fight is certainly not over.  The fight has simply shifted to a different type of fight: Continuing to "Live, Laugh, and Love" in the face of this disease is the new battle.  In true Linda-fashion, we went from the hospital (where we made this difficult decision to transition to Hospice), directly to the shore for a couple of days (thanks Coco and family!).  And a rough day of fatigue and pain couldn't keep Linda from enjoying fireworks with loved ones on the 4th.

************

I wrote the above a couple days ago.  And unfortunately, Linda's condition continues to deteriorate.  Over the last few days, she is sleeping almost all the time, with much confusion during her limited time awake. Through last night I noticed a significant decrease in strength, so I'm not sure whether we can expect further moments of coherence.

A clarification on pain and medication: we've been doing everything we can to be sure that Linda is feeling no pain-- that's the goal of Hospice care, to make Linda as comfortable as possible.  So please know that she does seem comfortable and at peace now.

Visitors: For now, I think it is best to absolutely minimize the number of visitors to the very, very closest family and friends.  This is a very difficult decision because there are so many of you who love and care for her so much, and obviously complicated and very difficult due to the rapid decline in her health.  Several days ago, Linda was really feeling overwhelmed by visitors-- I think visitors are exhausting and stressful for her at this point (wanting to be awake and to entertain; and also much frustration at not being able to find the right words). 

While Linda is not able to check emails/txts/facebook/voicemails, I am doing my best to collect all of those messages and read them to her.  I do feel that she can still understand all of your messages of love and support, so please feel free to keep them coming.  I'll do everything I can to make sure Linda hears them.  I think that hearing your voices (via voicemail) or even possibly seeing your faces (via a video message) would be a fantastic way to reach out to her.

14 comments:

  1. I am so saddened by the latest news about Linda. I only spoke with her a few times via the SSFMB and got to meet her in Philly. Despite not knowing her very long, I have been touched and inspired by her. My heart and prayers are with you all during this difficult transition. Sending lots of "sisterly" love, as well. Thank you so much for the update.

    Love,
    Cristin

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  2. It's been a while since I've been back in the Philly/NJ area besides to see family, but definitely think of the MCUDL family often, which obviously includes Linda and her wonderful kindness to me as I grew to learn about and love the game of ultimate since I started playing 10 years ago. Thinking of Linda and sending her all of my best wishes at this time.

    With lots of love,
    Min

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  3. Linda,
    It has been too many years since we've seen each other, but Facebook has been such a blessing so that I can see from far away your smiling face, even with all that you are going through. I am sad about Mike's latest update, but I am happy knowing the number of lives you have touched, knowing the love that you and Mike have shared, and knowing the deep number of friendships you have been a part of.
    I'm praying for you, Mike, John, your parents, and all of your friends. I love you!
    Mandy Miller

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  4. LC and Mike,

    Thank you for sharing this difficult news. The strength and love that you both show is so beautiful. We love you, friends. We pray that your pain is minimal and that comfort and joy visit you as often as possible.

    Sending all our love,
    Jen, Jim (are you REGETZ?), Ella, and Connor

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  5. Linda (and Mike, whom I never met),
    You were a wonderful friend during our years at RPI, and while we have not remained in close touch, I am honored you allowed everyone to share in your story of courage and grace. My prayers are with you and your whole family. - Erik Anderson SAE'97 and RPI friend

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  6. Linda,
    I know that it has been many years but I have been following your fight through Facebook and this blog. I am deeply saddened to hear this latest update. My thoughts are with you and your family now. Please know that you have been an inspiration to so many and your grace, courage and strength in the face of this disease is astonishing. Wishing you peace, love and joy.

    Jennifer (Bennett) Kiersz

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  7. Linda,

    I, too, have been following your blog through facebook, and I hope that when I encounter difficulties in life that I face them with half the grace and strength with which you have faced yours. Thank you for sharing your battle with us all.

    Love to you and your family,
    Renee Weller
    Gates Chili, Class of 1996

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  8. Linda, my heart is breaking... You are truly an inspiration to so many and it is because you have been not only brave enough to fight cancer but also share your journey with us. I love you friend <3

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  9. Please hug her extra fiercely (with as much as she can tolerate) from me. Linda is amazing and strong... But I have to make it a point to say that you are so amazingly strong too... You are holding up the bridge for so many people in addition to yourself and Linda... Hang in there.

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  10. Linda, I never really knew you that well but I was friends with your brother John at Gates-Chili. I have not been aware of your circumstances until recently through my brother, Shane, who knew you also from G-C. I have read this blog and am astounded at your strength through adversity. You truly are an inspiration and my thoughts are with you and your family.

    Peace & Love,
    Chris Logan (G-C class of '96)

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  11. Linda, you are the most amazing girl I've ever known!! Even though it's been so long since I've seen you, to this day, you come to mind every time I hear Brown Eyed Girl.. and I'm sure you always will!! Thank you so much for all the joy you brought to my life and so many others in all our good times with Summer's Best and in EVERY TIME and with EVERYONE you were around!! God is good and His Spirit is strong in you!

    Thanks for being such a blessing in my life,
    Lotsa love,

    Tim Rowbotham

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  12. I am so saddened by this news. Mike I have never met you but heard so much about you. Linda I am so grateful that our lives crossed paths as young women, think around 28, being diagnosed with breast cancer. We attended the young survivor conference in Denver and shared many great laughs. You had been through treatment and had your chemo curl hair and I was just starting out and so scared. You made me feel so calm and were such an inspiration. I remember sharing with you when I got my second diagnosis in 2010 and seeing your picture on FB from the walk in Philly with my name on your back. That is the kind of person you are. Shortly after the walk I got the call from you with your news. I have been praying for you every day. I will continue to fight the fight for you and all the other lives this shitty thing called cancer it has reached. You are an angel Linda. Xoxo love Jen

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  13. We are deeply saddened to hear about the recent development. Our thoughts and prayers are with you both.

    Torsten, Katrin, Elena and little Leon

    Linda, I admire your courage, fighting spirit and especially the joy of life you have maintained even as things got from bad to worse. I am proud to know you as a dear colleague, friend and role model. There is no "over", only "next". Keep believing.

    Love,

    Torsten

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  14. Dear Linda,
    You come from a family of fighters and it shows.
    I know you will continue to fight, chemo or no, and continue to make life beautiful.
    Thanks for showing a fellow Spartan how to live gracefully and cherish every moment.
    Glad you have a strong man by your side.
    Roland and Luba

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