posted Thursday, 8 September 2005
I got one extra day of normalcy this cycle, due to Labor Day. The weekend was completely crazy, with my cousin Laura's wedding (see Family Photo Album for photos), my dad visiting, painting my bedroom (Blue Heron, by Benjamin Moore...4th column, 6th row), Susie & Jaeger's fairwell party & picking up furniture from Angela in center city Philly. Phew!
Tack that weekend on to a week where I tried to work two days (and found myself incredibly exhausted) and no wonder I've been asleep since Monday!
Despite my best attempts to make up for lost calorie's this cycle (Abby was visiting and we had some fantastic meals, including pulled pork at prospectors, crab cakes & chocolate eruption cake in mt holly and a nice little breakfast with lots of bacon), I've continued to lose a few more pounds, finding myself at the weight I was when I walked the halls of GC High School. Body composition is, of course, a bit different, since I haven't really been doing any track workouts, but I did finally start using my 3 pound weights to get some tone back in my arm (I have to start slow and watch for swelling in my "bad" arm now). I thought I was ready to start running again, but I've been having some trouble with the incision from my re-excision. It's not infected, but the fluid that built up where they removed the tissue has begun to seep out through a tiny pin-hole in the incision. Lovely. Apparently, the chemo is preventing my body from healing as it normally would, leaving me constantly changing the gauze to prevent from looking like I'm lactating!
Anyways, Walt got the honors this week, chauffering me to chemo. I met two nice women there - Karen & Lynda, but they were just there for "quickies"... I had a bit of a reaction to the Adriamycin this time, breaking out in hives as the nurse pushed in the meds... but it subsided once she was done. I didn't get sick this time, but I wonder whether I would have felt better if I had just let myself get sick. Instead, I played the "don't throw-up game" for several hours Monday night, before finally falling asleep. I don't recall being awake for much of yesterday, but I did watch 4 episodes of Gilmore Girls, so I must have been awake for a little bit. Nancy came over to cheer me on with my shot, which I did all by myself again. I think that for $3000, they should put a prize in with the shot so that you get something fun (like a water tattoo or one of those rubber things that you throw against the wall and then they walk down the wall) after you take your shot. I may write to Amgen and let them know.
I finally ate a little bit today though - had 2 scrambled eggs for dinner - and am starting to feel a bit perkier. I am headed to Hershey PA for the weekend for the ZS Princeton 10 Year Anniversary Celebration... not quite Cancun, but I will take it! Even just the change of scenery will be worth it!
Feeling thankful this week for:
Tack that weekend on to a week where I tried to work two days (and found myself incredibly exhausted) and no wonder I've been asleep since Monday!
Despite my best attempts to make up for lost calorie's this cycle (Abby was visiting and we had some fantastic meals, including pulled pork at prospectors, crab cakes & chocolate eruption cake in mt holly and a nice little breakfast with lots of bacon), I've continued to lose a few more pounds, finding myself at the weight I was when I walked the halls of GC High School. Body composition is, of course, a bit different, since I haven't really been doing any track workouts, but I did finally start using my 3 pound weights to get some tone back in my arm (I have to start slow and watch for swelling in my "bad" arm now). I thought I was ready to start running again, but I've been having some trouble with the incision from my re-excision. It's not infected, but the fluid that built up where they removed the tissue has begun to seep out through a tiny pin-hole in the incision. Lovely. Apparently, the chemo is preventing my body from healing as it normally would, leaving me constantly changing the gauze to prevent from looking like I'm lactating!
Anyways, Walt got the honors this week, chauffering me to chemo. I met two nice women there - Karen & Lynda, but they were just there for "quickies"... I had a bit of a reaction to the Adriamycin this time, breaking out in hives as the nurse pushed in the meds... but it subsided once she was done. I didn't get sick this time, but I wonder whether I would have felt better if I had just let myself get sick. Instead, I played the "don't throw-up game" for several hours Monday night, before finally falling asleep. I don't recall being awake for much of yesterday, but I did watch 4 episodes of Gilmore Girls, so I must have been awake for a little bit. Nancy came over to cheer me on with my shot, which I did all by myself again. I think that for $3000, they should put a prize in with the shot so that you get something fun (like a water tattoo or one of those rubber things that you throw against the wall and then they walk down the wall) after you take your shot. I may write to Amgen and let them know.
I finally ate a little bit today though - had 2 scrambled eggs for dinner - and am starting to feel a bit perkier. I am headed to Hershey PA for the weekend for the ZS Princeton 10 Year Anniversary Celebration... not quite Cancun, but I will take it! Even just the change of scenery will be worth it!
Feeling thankful this week for:
- Abby for taking a few days off work to come and visit (blankets & bears)
- Dad for painting my room, vacuuming my house and hanging out with me all weekend
- Matt, for furniture delivery
- Angela, for furniture & pooh bear
- Walt for spending the day at Chemo with me
- Nancy for coming over and watching Gilmore Girls with me
Comments:
1. michael allen left... 
i don't know if john told you i work at amgen here in RI...in my 2.5 yrs here i've gotten plenty of trinkets from them, such that we have a "shrine". the best ones i see for you are a yo-yo, a slinky, and a magic 8-ball keychain. though i like the wall walkers. i can send you some water tatoos for guinness beer, how's that sound? take care.
Saturday, 10 September 2005 8:15 am
i don't know if john told you i work at amgen here in RI...in my 2.5 yrs here i've gotten plenty of trinkets from them, such that we have a "shrine". the best ones i see for you are a yo-yo, a slinky, and a magic 8-ball keychain. though i like the wall walkers. i can send you some water tatoos for guinness beer, how's that sound? take care. 2. Linda Casill left... John didn't mention it... what are you doing for Amgen? I know a bunch of folks out in CA with Amgen... The magic 8 ball sounds like a perfect prize... my next shot is scheduled for the 20th!
Sunday, 11 September 2005 2:24 pm
John didn't mention it... what are you doing for Amgen? I know a bunch of folks out in CA with Amgen... The magic 8 ball sounds like a perfect prize... my next shot is scheduled for the 20th! 3. nici begert left... Hey Linda its nici begert... Love the wigs!!!
Sunday, 11 September 2005 3:20 pm
Hey Linda its nici begert... Love the wigs!!! 4. michael left... i know a bunch of folks in CA too b/c of a project i've been working on. i work in the QC labs testing raw materials for enbrel (that's what we make in RI). i've asked john for your address after which you will be getting a magic 8 ball. :)
Monday, 12 September 2005 8:19 am
i know a bunch of folks in CA too b/c of a project i've been working on. i work in the QC labs testing raw materials for enbrel (that's what we make in RI). i've asked john for your address after which you will be getting a magic 8 ball. :) 
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